Dementia Projects
MAKING SPECIAL: LIVING WITH DIGNITY, HOPE AND JOY IN THE MIDST OF DEMENTIA
Research funded by Lakehead University
Dr. Pauline Sameshima (PI), Canada Research Chair in Arts Integrated Studies, Lakehead University
Dr. Elaine Wiersma, Associate Professor, Department of Health Sciences, Lakehead University
Dr. Pamela Wakewich, Professor of Sociology and Women’s Studies, Lakehead University
Dayna Slingerland, Research Assistant, Lakehead Galleries Coordinator (2016)
People living with dementia are typically seen as recipients, rather than as co-creators of services and knowledge mobilization tools. Our research will enable people living with dementia to be public intellectuals and contributors to changing the face of dementia. We believe that that through telling everyday stories, and making ordinary objects and events “special”, the stories of people living with dementia can create new cultural understandings of the positive aspects of living with dementia, including dignity, hope, and joy. Our research team uses stories, photographs, poetry, and videos to gift to the participants and is a means to create memories.
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DEVELOPING A SELF-MANAGEMENT PROGRAM FOR DEMENTIA: INTEGRATING RESEARCH, CARE PRACTICES, AND CLIENT EXPERIENCES
Research funded by the Canadian Institutes of Health Research
Dr. Elaine Wiersma (PI), Centre for Education and Research on Aging & Health, Lakehead University
Ruth Wilford (Project Manager)
Personal Advocates
Bill Heibein
Brenda Hounam
Jim Mann
Co-Investigators
Dr. Sherry Dupuis, Associate Professor, Department of Recreation and Leisure Studies, University of Waterloo
Dr. Mary Lou Kelly, Professor of Social Work and Gerontology, Lakehead University
Dr. Deb O'Connor, Professor, Social worker, Director of the Centre for Research in Personhood and Dementia, University of British
Columbia
Dr. Carrie McAiney, Associate Professor, Department of Psychiatry and Behavioural Neurosciences, McMaster University
Dr. Ken LeClair, Professor and Chair of the Division of Geriatric Psychiatry, Queen's University
Dr. Michel Bédard, Canada Research Chair in Aging and Hearth, Northern Ontario School of Medicine, Lakehead University
Dr. Pauline Sameshima, Canada Research Chair in Arts Integrated Studies, Lakehead University
Dr. John Puxty, Chair of Geriatric Medicine, Queens University
Research Assistant
Shannon Ferguson, Lakehead University
Principal Knowledge User
David Harvey, Director of Programs & Services of Alzheimer Society of Ontario
Knowledge Users
Lisa Loiselle, Associate Director of Research for Murray Alzheimer Research and Education Program, University of Waterloo
Kathy Hickman, Education Manager for the Alzheimer Society of Ontario
Kathy Kennedy, Director of Programs & Services of the Alzheimer Society of British Columbia
Alison Denton, Executive Director of the Alzheimer Society Thunder Bay
Dr. Jennifer Gillies, Executive Director for the Alzheimer Society of Kitchener-Waterloo and Cambridge
The goal of the study is to accelerate the translation of knowledge into action by developing a self-management program for people living with dementia, and examining the process whereby people with dementia and other knowledge users are involved in the program development process.
Research funded by the Canadian Institutes of Health Research
Dr. Elaine Wiersma (PI), Centre for Education and Research on Aging & Health, Lakehead University
Ruth Wilford (Project Manager)
Personal Advocates
Bill Heibein
Brenda Hounam
Jim Mann
Co-Investigators
Dr. Sherry Dupuis, Associate Professor, Department of Recreation and Leisure Studies, University of Waterloo
Dr. Mary Lou Kelly, Professor of Social Work and Gerontology, Lakehead University
Dr. Deb O'Connor, Professor, Social worker, Director of the Centre for Research in Personhood and Dementia, University of British
Columbia
Dr. Carrie McAiney, Associate Professor, Department of Psychiatry and Behavioural Neurosciences, McMaster University
Dr. Ken LeClair, Professor and Chair of the Division of Geriatric Psychiatry, Queen's University
Dr. Michel Bédard, Canada Research Chair in Aging and Hearth, Northern Ontario School of Medicine, Lakehead University
Dr. Pauline Sameshima, Canada Research Chair in Arts Integrated Studies, Lakehead University
Dr. John Puxty, Chair of Geriatric Medicine, Queens University
Research Assistant
Shannon Ferguson, Lakehead University
Principal Knowledge User
David Harvey, Director of Programs & Services of Alzheimer Society of Ontario
Knowledge Users
Lisa Loiselle, Associate Director of Research for Murray Alzheimer Research and Education Program, University of Waterloo
Kathy Hickman, Education Manager for the Alzheimer Society of Ontario
Kathy Kennedy, Director of Programs & Services of the Alzheimer Society of British Columbia
Alison Denton, Executive Director of the Alzheimer Society Thunder Bay
Dr. Jennifer Gillies, Executive Director for the Alzheimer Society of Kitchener-Waterloo and Cambridge
The goal of the study is to accelerate the translation of knowledge into action by developing a self-management program for people living with dementia, and examining the process whereby people with dementia and other knowledge users are involved in the program development process.
THE DEMENTIA EXPERIENCE: PEOPLE AND PATHWAYS
Research funded by Eli Lilly, a research-based pharmaceutical company
2013-2016
Dr. Elaine Wiersma (PI), Associate Professor, Department of Health Sciences, Lakehead University
Dr. Pauline Sameshima, Canada Research Chair in Arts Integrated Studies, Lakehead University
Dr. Sherry Dupuis, Associate Professor, Department of Recreation and Leisure Studies, University of Waterloo
Dr. Paul Caffrey, Policy Analyst, Alzheimer Society of Ontario
David Harvey, Director of Programs & Services of Alzheimer Society of Ontario
This project aims to capture the experiential elements of the dementia journey and align these with key points in the care pathway. The mapping exercise is intended to be a living model that can be built upon and further developed in partnership with the Alzheimer Society of Ontario. As a direct benefit to the Alzheimer Society, this work has the potential to guide program evaluation, contribute to service design and support awareness campaigns. An experience-based understanding of the dementia care pathway will also inform public policy and heath system planning advocacy efforts with external partners, including primary care, long-term care, community service agencies, regional health agencies and government.
Research funded by Eli Lilly, a research-based pharmaceutical company
2013-2016
Dr. Elaine Wiersma (PI), Associate Professor, Department of Health Sciences, Lakehead University
Dr. Pauline Sameshima, Canada Research Chair in Arts Integrated Studies, Lakehead University
Dr. Sherry Dupuis, Associate Professor, Department of Recreation and Leisure Studies, University of Waterloo
Dr. Paul Caffrey, Policy Analyst, Alzheimer Society of Ontario
David Harvey, Director of Programs & Services of Alzheimer Society of Ontario
This project aims to capture the experiential elements of the dementia journey and align these with key points in the care pathway. The mapping exercise is intended to be a living model that can be built upon and further developed in partnership with the Alzheimer Society of Ontario. As a direct benefit to the Alzheimer Society, this work has the potential to guide program evaluation, contribute to service design and support awareness campaigns. An experience-based understanding of the dementia care pathway will also inform public policy and heath system planning advocacy efforts with external partners, including primary care, long-term care, community service agencies, regional health agencies and government.
Artwork from this project is on permanent display at the Alzheimer Society of Ontario, 20 Eglinton Ave. West. Toronto, ON.